About Association For Glycogen Storage Disease UK
AGSD-UK supports adults and children across the UK who are living with any one of twelve ultra-rare glycogen storage diseases. These conditions can be extremely disabling and in some cases, fatal if not diagnosed and treated at their early stages. Sadly, because they are rare in nature they are not widely understood and known about, even within the health-care community and this often means that diagnosis is very late which can result in life changing deficiencies in the liver, heart, kidneys and muscles. AGSD-UK seeks to build a greater awareness within the health-care community whilst continuing to offer patient and family support, advice on managing symptoms and support for new research.
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